We Are The
Sickle Cell Community Consortium
Who We Are
The Sickle Cell Community Consortium (SC3) is a national nonprofit organization founded in 2014 by individuals living with sickle cell disease, caregivers, and community-based organizations. Its mission is to unify and amplify the voice of the sickle cell patient and caregiver community by coordinating advocacy, education, research, and policy initiatives that are patient-powered and community-led.
What SC3 Does:
SC3 serves as a platform that brings together sickle cell stakeholders—including patients, caregivers, healthcare providers, researchers, nonprofits, and industry partners to:
- Identify needs and gaps in the sickle cell community
- Develop collaborative strategies to address them
- Empower patients and caregivers to lead decision-making processes
Key Programs and Initiatives Include:
- Sickle Cell Warrior Network: A national alliance of patients and caregivers leading education and advocacy.
- Annual Leadership Summit: Training and governance event for patient and caregiver leaders.
- Annual Sickle Cell Warriors Convention: A patient-centered national gathering focused on education, community, and empowerment.
- Annual Caregivers Summit: Dedicated space for caregivers to gain support and tools.
- Sickle Cell December EXPO: A showcase of research, innovation, and community efforts.
- SC3 Kids, Young Adults, and Next Generation Programs: Youth engagement and leadership initiatives.
- Sickle M.A.N. (Men’s Action Network): A platform supporting male warriors and caregivers.
- Warrior University: Training in patient-centered research, nonprofit management, and advocacy.
- Mental Health and Wellness Initiative: Addressing emotional and psychological health in the sickle cell community.
- Project P.E.E.P.: Patient engagement in education and research.
- Educational Publications: Including guides on school policies, living with sickle cell, and specific medical issues like priapism.
Core Philosophy:
SC3 operates on a Collective Impact Model, meaning it empowers communities to define their own problems and implement their own solutions—with the support of national infrastructure and strategic partnerships. The goal is equity, empowerment, and sustainable change in the care and lives of those affected by sickle cell disease.
You can learn more at www.sicklecellconsortium.org.