Sponsorships are available to support the 8th Annual Sickle Cell Patient & Family Educational Symposium Contact Doris Bailey at Finance@sicklecellconsortium.org for more details or to sponsor.
The 8th Annual Sickle Cell Patient & Family Educational Symposium is the only national patient-designed, organized and hosted meeting of its type created specifically to address needs of sickle cell patients and caregivers. The Symposium brings together patient warriors, caregivers, advocates, healthcare providers and supporters to empower, encourage and educate each other as we define what it is to live SICKLE STRONG. There are multiple opportunities to present to the entire group, interact one-on-one with patients and caregivers and create contacts with community-based organizations and opinion leaders of the sickle cell community. Exhibit booths are available at deeply discounted rates for community sponsors and small businesses. Sponsorship packages include advertisement opportunities, social media advertisement, prominent logo display, and numerous other perks. Your support will enable us to educate our community, support the social, medical and mental health needs of the sickle cell warrior community. We have prepared special, community-level support packages and invite you to join us as we empower the patient/caregiver community to lead the charge in creating and promoting stainable improvements within the sickle cell community.
This is an educational conference planned by, and for, individuals living with sickle cell disease, our caregivers, to address issues that are most relevant to the sickle cell community. Some of the latest research in sickle cell disease will be discussed as well as management of the most common complications including treatment options; gene therapy, transplant, transfusion, and new therapeutic drugs available (or being researched) for sickle cell disease. Educational content will be provided in the form of pre-recorded, video content. Sickle cell stakeholder groups are then invited to engage in Community Conversations to discuss the top prioritized subject matter themes. The recorded educational content will serve to provide an overview of a wide array of topics related to the subject matter of the Community Conversation. Healthcare providers, industry, and other stakeholders are invited to join patients and caregivers in discussions that shape sickle cell research, education, policy, advocacy, and awareness. Patients and caregivers are the true experts of our own bodies, perceptions, and experiences. We are turning the table and invite all others to come and learn from us.
The primary audience is consumers with sickle cell disease, adults and children, their caregivers, and sickle cell advocates.
After completing this course, participants should be able to:
- Review the most common complications of sickle cell disease
- Discuss curative options and therapies
- Review alternative and complimentary treatment options
- Understand new drug therapies for sickle cell disease!