FAQ
Being that this convention is digital we know that you may have lots of questions. Here is a list of common asked questions. If you don't find the information you need, please feel free to reach out to our Tech Team.
Frequently Asked Questions
I can’t log in on Whova to view the session?
Make sure you are using the email address that you registered with.
I am not computer savvy so is there anyone that can help me get logged in?
Yes email our tech support and they will get back to you.
I don’t think I registered in time for the conference. Is there any way for me to still see the conference?
Absolutely! You can still register for the conference even on the day of and during the conference.
Is there a charge to download Whova?
The Whova event app is free for event attendees to download and use from the App Store or Google Play.
Is Whova available for android and Iphone?
Yes.
Can I stream the session using my data?
Yes but we cannot guarantee the strength of the connection or additional charges buy your cell phone provider.
I signed up with email addresses that I no longer have access to what can I do?
Reregister with an email address that you do have access to.
How can I ask a question during the session on Whova?
Use the Chat feature.
I am having problems with using Whova on my mobile device can I view on my computer?
Yes you can.
The Session keeps freezing how can I fix it? How can I speak to tech support?
Reach out to our Tech Support Team
How do I get to the booth?
You should have been sent an email by of the team members. Please review that email. For instructions and or directions on how to get in.
I am in the wrong booth can I switch?
Yes, Of course. Please make sure that you are logged in using the correct zoom account. Note: The Zoom email account should be your own.
How can I donate to this organization?
You can donate by going
Can I record the sessions?
No, all sessions will be recorded and placed on the sickle cell classroom.
Can I go live on my social media to stream the sessions?
We ask that you do not go live for the sessions, but you are welcome to post about the sessions on your social media sites. You can tweet quotes and create short clips no longer than 30 seconds.
How can I get a copy of the conference?
All Sessions will be available on the sickle cell classroom. Stay connected for the updates.
Can I reach out directly to the speakers?
The info on the speakers profiles are on the whova app and you are more than welcome to contact them based on that information.
Can warriors from outside the US apply for scholarships?
Yes, they can apply, travel is not reimbursed.
Do children need to apply for scholarships?
Yes, every individual attending should apply, even babies.
What type of scholarships are available?
4 Types - Registration scholarship, Lodging scholarship, Golden Warrior scholarship (60+ years), Newly Diagnosed Family scholarship
When will I be notified if I have been awarded a scholarship?
Scholarships are awarded on a first-come, first-served basis. The SC3 team is working diligently to notify awardees as soon as possible, and will begin notifications on Monday, June 16th. If you have not been notified within 3 business days of application after this date, please email scholarships@sicklecellconsortium.org to learn if additional information is needed for your application.
Where can I review additional information and guidelines about the SC3 Scholarship policy?
Additional information can be found at www.sicklecellconvention.org/guidelines
Convention Details
Is there a shuttle from the airport?
No free shuttle, but paid shuttle options exist
What activities are planned?
Various tracks and activities are planned for all age groups, including special activities for young adults, caregivers, men, children, women, trait carriers, post-transformative therapies warriors, and more.
Are there nurses services?
Yes, for children 6 months to 4 years old
Participation
How can organizations become partners with the Sickle Cell Consortium?
Apply though tinyurl.com/sc3partnership25, open to international CBOs as well
Definition
What is a Primary Caregiver?
The Sickle Cell Consortium defines Primary Caregiver as an individual who takes the lead role in providing ongoing assistance and care to someone with a chronic illness, disability, or other long-term health condition. This person is typically responsible for managing the day-to-day physical, emotional, and logistical needs of the individual receiving care.
Key Responsibilities of a Primary Caregiver:
- Medical Support: Administers medications, monitors symptoms, and attends medical appointments.
- Daily Living Assistance: Helps with tasks such as bathing, dressing, eating, mobility, and hygiene.
- Emotional & Social Support: Provides companionship, encouragement, and advocacy.
- Care Coordination: Manages schedules, communicates with healthcare providers, and ensures care continuity.
- Crisis Management: Responds in emergencies and advocates for appropriate interventions.
Who Can Be a Primary Caregiver?
- A parent, spouse, adult child, or relative
- A close friend or neighbor
- In some cases, a professional caregiver or home health aide
In the context of events like the Sickle Cell Warriors Convention, the primary caregiver often plays a crucial role in travel logistics, emergency care planning, and supporting the warrior’s participation in convention activities. Some programs may offer special sessions or accommodations for caregivers in recognition of their essential role. "