top of page

2025 REGISTRATION

WELCOME

Welcome to the 12th Annual Sickle Cell Warriors & Caregivers Convention, July 15-20, at the Renaissance Orlando at SeaWorld. This hybrid meeting can be enjoyed both virtually and in person. Both the virtual and in-person sides of the Convention will include unique content, education, engagement, entertainment, and fun. 

The Convention will begin with an opening reception on Wednesday, July 15th, and will end after the breakfast on Sunday, July 20th.

Family with Tablet

12th Annual Warriors Convention

1

Lodging

The 12th Annual Warriors Convention will be held at the RENAISSANCE ORLANDO AT SEAWORLD hotel. A limited number of lodging scholarships are available (BY APPLICATION ONLY) for sickle cell warrior patients and caregivers of minor warriors ONLY. To apply for a lodging scholarship visit https://tinyurl.com/2025WarriorConScholarship. There are a liminted number of lodging schoalarships avaiable. Applicants should NOT assume a lodging award until notified by email. If awarded, the lodging cost will drop to $0. The regular negotiated hotel rate is $149 per night. You MUST be fully registered to receive a lodging scholarship.

2

scholarships

- Registration: All sickle cell patient and caregiver warriors will automatically receive the scholarship registration rate of $50. There are no additional registration scholarships available.

 

- Flights: There are NO scholarships available to cover the cost of travel.

 

- Lodging: A limited number of lodging scholarships are available (BY APPLICATION ONLY) for sickle cell warrior patients and caregivers of minor warriors of ONLY. To apply for a lodging scholarship visit https://tinyurl.com/2025WarriorConScholarship​. There are a limited number of lodging scholarships available. Applicants should NOT assume a lodging award until notified by email. If awarded, the lodging cost will drop to $0. For questions about Scholarships, contact Rose Millard or Maria Rivera at scholarships@sicklecellconsortium.org

3

Add on

The Royal Gala: 

Step into elegance and celebration at the 10th Anniversary Royal Gala, a black tie fundraising affair hosted by the Sickle Cell Community Consortium during the 12th Annual Sickle Cell Warriors Convention.

 

This year’s Gala is more than an evening of fine dining and glamour - it is a powerful tribute to a decade of leadership, advocacy, and transformation within the sickle cell community.  As we honor our journey from grassroots movement to national force, we will also raise critical funds to continue empowering patient voices, advancing community-driven initiatives, and driving equitable access to care and cures.​​​​​​​​​​​​​​

All registered sickle cell patients and caregivers will receive one (1) ticket to the Royal Ball with registration. These tickets are non-refundable.

Ticket Types

Sickle Cell Patient/Caregiver: $50 ($500 FULL COST)

This automatic scholarship rate is for all sickle cell warriors and caregivers and includes access to all sessions and workshops, the exhibit hall, 1 ticket to the Homecoming, and one (1) ticket to the Royal Ball. Please review the scholarship guidelines when registering as a sickle cell patient or caregiver with this scholarship rate. All sickle cell warriors and caregivers will receive a ticket to the Royal Ball included with registration.

WHAT IS A PRIMARY CAREGIVER

 

The Sickle Cell Consortium defines Primary Caregiver as an individual who takes the lead role in providing ongoing assistance and care to someone with a chronic illness, disability, or other long-term health condition. This person is typically responsible for managing the day-to-day physical, emotional, and logistical needs of the individual receiving care.

 

Key Responsibilities of a Primary Caregiver:

 - Medical Support: Administers medications, monitors symptoms, and attends medical appointments.

 - Daily Living Assistance: Helps with tasks such as bathing, dressing, eating, mobility, and hygiene.

 - Emotional & Social Support: Provides companionship, encouragement, and advocacy.

 - Care Coordination: Manages schedules, communicates with healthcare providers, and ensures care continuity.

 - Crisis Management: Responds in emergencies and advocates for appropriate interventions.

 

Who Can Be a Primary Caregiver?

 - A parent, spouse, adult child, or relative

 - A close friend or neighbor

 - In some cases, a professional caregiver or home health aide

 

In the context of events like the Sickle Cell Warriors Convention, the primary caregiver often plays a crucial role in travel logistics, emergency care planning, and supporting the warrior’s participation in convention activities. Some programs may offer special sessions or accommodations for caregivers in recognition of their essential role.

bottom of page