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CITIZEN SCIENTIST: THE SICKLE CELL CLASSROOM SICKLE CELL DISEASE & TRAIT EDUCATION FOR THE EXPERT PATIENT

CLASSROOM 1

Natural Treatments & Therapies (Complimentary & Alternative Methods of Healthcare) Many of the most effective therapies for sickle cell occur outside of the hospital and clinic setting. This Community Conversation focuses on alternative treatments and natural therapies. Join warriors and caregivers as we discuss how we treat pain, inflammation, and other disease complications without pharmaceutical intervention. Visit www.sicklecellconvention.org for recorded educational sessions.

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CLASSROOM 2

Curative Therapies. What is a "cure"? What curative treatments and options are being researched? What's available now? Is it really a "cure"? What does an ideal cure look like to sickle cell warriors? What do we, patients and caregivers" want to see in a cure?

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CLASSROOM 3

Sickle Science: Beyond the Red Blood Cell What exactly is happening when we go into sickle cell crisis? We've learned that there is so much more to sickle cell than the red blood cell. Warriors and Caregivers have expressed a desire to discuss the deeper science of sickle cell. We know about the sickle mutation that causes the hemoglobin to stick together causing the red blood cell to become sickle-shaped. Let's talk about this and everything else. What else is happening in our bodies? Curious minds want to know. *This will be the launch to a Warrior University class series to discuss the science of sickle cell.

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CLASSROOM 4

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Branding

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Storytelling

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DESIGN

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Consulting

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Trait Track

Trait Track

Trait Track
Physical Intensity & The SC Trait Warrior

Physical Intensity & The SC Trait Warrior

39:25
Play Video
SCT & RMC Kidney Connection

SCT & RMC Kidney Connection

41:16
Play Video

CITIZEN SCIENTIST:

THE SICKLE CELL CLASSROOM

 

Excellence and expertise exactly where it belongs - in the hands of the patients.  We are proud to bring back the “Citizen Scientist” approach to disease education, patient-focused research, and clinical trial participation. We are of the firm opinion that no one can better define the sickle cell experience and how to navigate its challenges, than those living with the disease and our caregivers.

Last year we introduced "Citizen Scientists: Unpacking the Science of Sickle Cell", an initiative designed to cast patients and caregivers in the role as experts; to ensure that patients and caregivers have the knowledge to thoroughly understand their disease, and provide a space for their voices to be heard. The Citizen Scientist: Sickle Cell Classroom is an online platform housing dozens of educational videos to help the sickle cell patient and caregiver to take up the mantle as sickle cell expert and educator. Visit the Classroom to learn more about sickle cell science and symptoms, then join the live conversations during convention.

Class is now in session!

Young Adult Track

Young Adult Track

Young Adult Track
The Language of Pain

The Language of Pain

20:52
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Goal Setting & Achieving

Goal Setting & Achieving

29:40
Play Video
Money Matters For Young Adults

Money Matters For Young Adults

37:07
Play Video

Men's Track

Men's Track

Men's Track
Conflict Resolution For Men

Conflict Resolution For Men

22:45
Play Video
Men & Mental Health

Men & Mental Health

17:54
Play Video
Priapism & SCD

Priapism & SCD

19:04
Play Video